Showing posts with label febrile seizures. Show all posts
Showing posts with label febrile seizures. Show all posts
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Tuesday, January 19, 2010

As many of you know, we recently had a traumatic event with our soon-to-be two year old toddler, Ella. Because of all the emails, texts, and calls, I just wanted to take a moment to update everyone.

After (what will now be dubbed forever as) THE EVENT, we made it home from the emergency room around 1 a.m. on Friday, January 15. Ella had no more seizure episodes and her fever was lower.

Friday, as well as Saturday, she was O.K. Not well, but as O.K. as a sick little baby could act.

Sunday her fever started to spike again. Late afternoon, she started to become extremely lethargic, as she was before her seizure on Thursday. Not taking any chances, we loaded up and headed back to the E.R. (our pediatrician is on vaca for 10 days and it was a holiday weekend, anyway).

Turns out? Ella has RSV, or Respiratory Syncytial Virus. You may (or may not) know, but RSV is an extremely contagious virus that can be potentially life-threatening to infants and toddlers. You can read more about it at the Centers for Disease Control and Prevention, but I won't bore you here.

In a nutshell, we were transferred to another hospital (yep, that's two ambulance rides and two hospitals in three days for those of you keeping score) where they kept Ella overnight. Her fever stayed very high until Monday morning. After that, she started to run around the room and play and eat. We were were released late afternoon.

She still has a cough, but no more fever, and thankfully, no more seizures.

She feels much, much better than her parents, who are now both sick from her germiness.

Thank you, everyone, for your concern, thoughts and prayers. It was so overwhelmingly supportive that I'll be writing a blog post about it when I can wrap my thoughts around the enormity of it.

By the way, do you know how long it takes to feel like you've showered all the germs off of two ambulance rides and two hospitals?!?

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Friday, January 15, 2010

Life is not meant for a mother to experience giving her child CPR. But what are you to do when your 23-month-old child is not breathing, lying lifeless and blue on the kitchen floor?

But I'm getting ahead of myself.

Yesterday wasn't abnormal, for the most part. Ella awoke with a cough and runny nose, but little more. We went out, she ate some french fries, she sang in the supermarket -- all things that she would do on any random day.

After waking from a nap later, she had a croupy cough and her fever started to rise. We are not new to the baby fever thing, having fought fevers as high as 105 with her, so I wasn't panicked. As the evening wore on, it wasn't getter better. The doctor suggested we dose her with the normal kid drugs and if her fever didn't go down before bed we take her to the emergency room.

Her fever started to go down, even if just a little. A little while later, a sudden spike and some lethargy had us worried. As I held her in my arms, she started to -- for lack of better description -- go out of it. Her eyes weren't focusing, she couldn't keep her eyelids open, her body was going limp.

And then suddenly something strange happened. She opened her eyes and looked up, not eyes rolling back, but actually looking up and focusing on something on the ceiling. When I stood up, she turned her head so she could see the same spot on the ceiling. For some reason, my actual thought was, "She's staring at Jesus." The hair on the back of my neck stood up.

I yelled for Todd to start the car to take her to the emergency room. Moments later, she clenched her teeth, she stared away, unfocused. She was obviously having a seizure. As I ran through the house with her in my arms she went totally limp.

She was unresponsive.
She was unconscious.
She wasn't breathing.
And she was turning completely blue.
Fast.

It's true what people say, things start to happen in slow motion like you're in a movie. I remember screaming in a voice I didn't even know I had, "NO GOD! PLEASE NO!" as I placed her on the kitchen floor. Her face was completely blue, her lips even bluer. There were dark, bluish-black circles under her closed eyes.

My health care training took over and I went into auto-pilot mode, alternately barking orders to Todd on the phone with 911, giving my 23-month-old daughter CPR and screaming at her to come back.

I don't know how much time elapsed, I suspect a minute or so, but it seemed like an eternity. She started breathing and the scary blue went away, but she was still out of it. I started doing things to trigger her memory. I sang Jingle Bells. I asked her about her favorite teacher at school. I used stern voice to tell her to stop it. Things that all seem ridiculous now seemed perfectly reasonable then.

We spent four hours with her in the emergency room, doing tests, keeping watch. She had a seizure. She has a sore throat. She has a cough that they're treating like croup.

Concrete evidence I can handle. A blue dying baby on my floor I cannot.

I slept in her room for the few hours that we did sleep this morning. I checked on her throughout the night and then awoke in a panic during the times I drifted off.

I was never happier than hearing, "Mama, hold you?" as she lifted her little toddler arms for me to pick her up this morning.

Things were back to normal for her, but they will never be the same for me.
Ever.